Anonymised health and care data will be used with three main aims:
1. Prevention and early intervention
- Supporting health goals like better diet, more exercise, or stopping smoking
- Preventing ill health or treating symptoms early
- Spotting risks of disease and supporting earlier diagnosis
2. More joined up services
- Increasing cooperation between GPs, community, and hospital care and with social care
- Increasing the amount of care and support delivered out-of-hospital
- Improving direct access to specialist advice and care for patients with chronic or long-term conditions
- Reducing unnecessary admissions to hospitals
3. Value for money
- Reducing the cost of treatments
- Spending more on preventing illness or treating it earlier, instead of treating patients who are already seriously unwell.
- Reducing management and administration costs
- Increasing health and care staff job satisfaction so that we retain our trained staff and enable them to better look after people’s health.
How do I opt out?
You need to do this in writing by post or email. To opt out of sharing your health and care data for purposes other than direct care, please download and complete our opt-out form (click here to download the opt-out form) or obtain a leaflet from your GP practice.
We need your NHS number to be able to process your request to opt out. This is our only way to verify your identity. If you don’t know your NHS number please visit the NHS website by clicking here or ask your GP practice.
Downloaded forms can be sent electronically by email to the address below but because there is no encryption with email, we do not advise sending your confidential information this way.
Web leaflet form in additional languages
- Web leaflet form (Bengali)
- Web leaflet form (Bulgarian)
- Web leaflet form (Somali)
- Web leaflet form (Spanish)
- Web leaflet form (Turkish)
if you require this leaflet in a language not listed above, please contact: firstname.lastname@example.org
What does this mean for me?
This data will then have your name and other identifiers removed before being used for analysis and planning.
Using the health and care data of our residents in this way will help us to identify gaps in care and better understand what local people need.
It will support activities that:
- Identify groups at risk of preventable or treatable diseases
- Enable better prevention and proactive care
- Help with planning and make accessing care easier
What does ‘secondary use’ mean?
Who will access my health and care data?
The anonymous data sets that are created will only be available to those working in health and social care in North Central London (GPs, NHS hospital and community services, the NCL Integrated Care Board and local authorities in NCL). They will have only access these for projects that aim to improve services. They will not be available to private companies or research organisations.
What are some of the ways this data may be used?
Questions they might be looking to answer could include:
- Are there any groups of patients that don’t access cervical screening? How could we make the service more accessible for them?
- Who is less likely to have their annual flu jab? What’s the best way to reach them to check if they want one?
- Are there any GP practices who are very good at getting vulnerable patients to have their annual health check? What can we learn from them?
- What groups of people are less likely to use stop smoking services after a doctor refers them?
What type of data will be included?
We will only include the standardised part of the clinical record, such as medicines prescribed, medical readings, and dates. No comments or notes will be included.
What is the legal basis for collecting this data?
For this reason, we have obtained consent from the Secretary of State by applying to the Health Research Agency Confidentiality Advisory Group (HRA CAG) for permission for the secondary use of patient data for specific purposes. This is done under Regulation 5 of the Health Service (Control of Patient Information) Regulations 2002 (‘section 251 support’). We are now allowed to process confidential patient information without consent for these three specific purposes:
- Preventing ill health, identifying and ranking risks and intervening early.
- Managing population health
- Planning and general analysis
What if I don’t want my health and care information used in this way?
How do I return the form?
FREEPOST NLP – JOINED UP CARE RECORD
Downloaded forms can also be sent electronically by email but because there is no encryption with emails, we do not advise sending your confidential information in this way. You can send your completed form to email@example.com
Important: Do not send National Data Opt-Out forms to this address as they will not be processed.
Can I change my mind and opt back in?
When we receive the completed form, we will add your health records to the shared records system based on your selected preference.